Update

Rather busy week, starting with a CT scan on Tuesday to check out why I had pain around my hip. As predicted the cancer has returned to the central nervous system (CNS) and the doctors asked me to come in on Wednesday to Acute Oncology to have an MRI and discuss immediate radiation therapy. They seemed to be surprised that I only suffered some pain and hadn't lost movement in my legs.

My steroid dose was increased from 4mg to 8mg on Tuesday night and the pain went straight away. On Wednesday it was increased to 16mg. The mood swings and appetite haven't changed as yet, but I imagine it will shortly - you have been warned.

Anyway MRI results revealed a few more tumours that the CT missed, three that were touching the spine, some that aren't. So I had my first dose of radiation this arvo and will have one each day until Monday. Then (fingers crossed) I can fly to Brisbane to catch the end of the Transplant Games, returning Sunday. On my return I will be given another five doses. It was great that they were able to accommodate my trip, I have been looking forward to it for ages.