Still waiting for my radiotherapist appointments. So no news really.
It's moving week, so today am resting and building up some energy, after a goodnights sleep.
Showing posts with label Radiotherapist. Show all posts
Showing posts with label Radiotherapist. Show all posts
Monday, 28 July 2008
Tuesday, 22 July 2008
Next step
Emotions were high on Monday, but after a good nights sleep I headed in to see the Radiotherapist. Had to stay in my room all day just in case they turned up, they will just vanish again if you aren't. Anyway I was there when he arrived and my brother Tony was able to be with me, so between the two of us we covered all the questions.
The plan is 5 shots of radiotherapy and this will start in about 10 days (they like a gap of 1-month between chemo and radiotherapy). Before then I go in to have a mask made for my face - that sounds like fun!
Everyone is reasonably confident that this will control the tumour and should give me an extra month or two or three.
So it's great to be out of the ward and back at Mum & Dad's. Next week the final touches are made to the house and moving day is Thursday the 31st - looking forward to this very much.
My PICC line half stopped working (will take in fluids, but not give bloods) so they took it out - now I'm free!! So back to two showers a day instead of one, in fact when I'm home with the gas hot water I might just stand in the shower all day.
Have lost my appetite this week, which is very strange for me. Was looking forward to losing some weight with little effort on my part, but they have put me back on 4mg of steroids so I'm sure I'll be in the fridge again.
The plan is 5 shots of radiotherapy and this will start in about 10 days (they like a gap of 1-month between chemo and radiotherapy). Before then I go in to have a mask made for my face - that sounds like fun!
Everyone is reasonably confident that this will control the tumour and should give me an extra month or two or three.
So it's great to be out of the ward and back at Mum & Dad's. Next week the final touches are made to the house and moving day is Thursday the 31st - looking forward to this very much.
My PICC line half stopped working (will take in fluids, but not give bloods) so they took it out - now I'm free!! So back to two showers a day instead of one, in fact when I'm home with the gas hot water I might just stand in the shower all day.
Have lost my appetite this week, which is very strange for me. Was looking forward to losing some weight with little effort on my part, but they have put me back on 4mg of steroids so I'm sure I'll be in the fridge again.
Chemo #5
Chemo # 5 has been cancelled. I reported headaches and other problems so Doctors decided to do another CT scan to see what's what. The tumour is growing again, which means the chemo isn't working.
They have referred me for Radiotherapy, and at this stage I'm waiting for a meeting with the Radiotherapist to see if this is a viable option or not. Unfortunately I might not see them till next week - so I have nothing to report for now.
As you can appreciate this is difficult news to process at this stage in the treatment. I had my head around being terminal, just not so soon, but I suppose I've past the 3-month prognosis.
So conversations have moved from short holidays to palliative care. The funny thing is that I'm the healthiest person in the ward by a long shot.
They have referred me for Radiotherapy, and at this stage I'm waiting for a meeting with the Radiotherapist to see if this is a viable option or not. Unfortunately I might not see them till next week - so I have nothing to report for now.
As you can appreciate this is difficult news to process at this stage in the treatment. I had my head around being terminal, just not so soon, but I suppose I've past the 3-month prognosis.
So conversations have moved from short holidays to palliative care. The funny thing is that I'm the healthiest person in the ward by a long shot.
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